Hi friends. Here’s a little snapshot of who I am and why I’m here:
My name is Alyson and I have Myalgic Encephalomyelitis, also known as Chronic Fatigue Syndrome (ME/CFS). I am a 22-year-old Psychology student living in Chicago. I am a Buddhist, an artist, an academic, a double-certified yoga instructor, a fur-mama, a girlfriend, a friend, a sister, a daughter, and a grand-daughter. I am a lover of reading, music, film, anything under the umbrella of Psychology, psychopathy documentaries, drawing, coloring, writing, animals, creative expression, meditation, yoga, food, Pinot Noir, coffee, San Pellegrino, and sweaters. I am a listener, a caretaker, a lover, a fighter, a survivor, and an advocate. I struggle with mental illness and have my whole life; I have Major Depressive Disorder (MDD), Generalized Anxiety Disorder (GAD), Panic Disorder (PD), ADHD, PTSD, Insomnia, and have been in recovery from Restrictive Anorexia Nervosa for 3 years and counting.
In April of this year, I was finally diagnosed with ME/CFS after 16-months of various specialists, doctors, appointments, needles, exams, and tests (see What Is ME/CFS?). Since mid-September, my condition has progressively worsened; high physical and mental fatigue, joint pain and aches bad enough to keep me in bed for most of the day, cognitive/neurological dysfunction (short-term memory loss, sever brain fog, Aphasia, headaches), light sensitivity, and sound sensitivity, just to name the most major symptoms that I personally experience.
Due to my illness, I am currently unable to do things that I was able to just a few months ago, things that I love. For instance, I cannot practice Vinyasa yoga in which I am trained, I cannot sit as my easel and draw for a few hours at a time, I cannot make solid plans (knowing I might have to cancel), I cannot bike, run, or be as active as I was and would like to be, I can rarely go out with friends, and somedays I simply can’t leave my apartment.
I decided that I needed some way to be social and keep my sanity (or what’s left of it) and created this blog for fellow ME/CFS warriors, their friends and families, my friends, my family, and myself. I want this to be a safe place where I can share my experiences and life adjustments (as well as some random art, quotes, thoughts, and tidbits) in the hopes of helping others feel they are not alone and to educate on this horribly debilitating and “invisible” illness.
I want to thank you for stoping by my site and keeping my spirits high through your positive energies and continuous support. If we are ever going to see a change in our society and medical community in how ME/CFS is treated and stigmatized, we need to continue to speak out and stand together!
Please feel free to contact me for any inquiries, or even just to say hi, because I would love to get to know you!
Namaste, beautiful people,